My Endo Story

This (endometriosis) is what has kept me so absent from this blog. It is time I talk about it in-depth. I am creating a fundraiser to help pay for my treatment. Please read, share, and donate if you can, especially if you want to see this blog get going again. Your support will help greatly in making that happen. Thank you so much.

I have been experiencing 10+ symptoms of endometriosis since my first period at age 11 but have had these problems constantly shrugged off. Often the responses would be “periods are just naturally painful,” “these are regular girl problems,” etc. For this, I was often put on birth control but found it unhelpful. The Ortho Evra patch worsened my acne to extremes to the point where I have scars all over my face despite being careful to never touch my face with my hands, let alone scratch or pick. I often bled on pillows at night because the acne was so bad. In 2017, I was prescribed pure estradiol to combat hot flashes and lactation, but it seemed to just worsen my problems.

 

At 17, I had a full PTSD break when repressed memories that I had long been only somewhat aware of (but were silenced by non-professionals and medical and psychiatric professionals in childhood) brutally resurfaced. Because of this, many of my symptoms have been blamed on PTSD. I am aware there are definitely crossovers, but not all of my symptoms can be only PTSD related.

 

I have begged for a laparoscopy for at least three years, as I have been concerned about endometriosis. I had a tubal ligation at 21 because I knew with my hormonal problems (and the other problems they told me I had but never quite matched up), a pregnancy would send me totally over the edge and thought naively that perhaps maybe a tubal would help manage some of these problems as well.

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Protected: The commitment to move forward & guilt vs shame

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Protected: CHARGE YOUR VOICE, AND ONCE YOU DO, NEVER STOP SCREAMING. (Trigger warning)

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All my plants are dying.

The depression is finally lifting to a tolerable degree. I believe being more honest with myself and others about my health, values, and belief system has helped tremendously. Being authentic has always been very important to me, and when I am less than completely genuine about my identity, my energies become fragmented and chaotic. I start doubting myself, and I denounce my positive traits, most of which come with their own duality of darknesses: I have wisdom because of what I have experienced, and I am loving towards people because of what I have needed to experience and didn’t. I set high standards for myself and demand better of myself because of past sins and mistakes. I create extraordinary things from extraordinary pain. One cannot exist without the other. Yin to yang, I am made of major dualities and opposing intensities, much like my own life and what I have lived through.

But all my plants are dying.

I have not watered them in so long. I have a rose plant and a glass bowl of succulents. They were both beautiful in their prime, and the rose plant even blossomed again this autumn, providing us with two wonderfully scented yellow flowers. I was always very good about watering them. I am a nurturer. It’s in my nature to take care of living entities, whether they be human, feline, or photosynthetic in nature. I have forgotten to give my furbaby Oskar his medicine routinely, as he has a respiratory infection right now. I’ve been giving him enough medicine for it to be clearing up, but I could have helped him heal much faster had I kept up the routine. This depressive episode turned me into someone I’m not.

I guess that’s the modus operandi of mental illness: They try to kill you from the inside out.

Unlike personality disorders, other mental illnesses are less embedded in one’s behavior, character, and system of living. Personality disorders often are developed in response to trauma or something occurring in utero, (e.g. serotonin syndrome), with the addition of witnessing violence at a young age, (which one might call trauma also), etc. But it’s also true that standard mental illnesses affect your behavior, as well. Depression causes fatigue, loss of interest, social withdrawal, negativity, suicidality, all sorts of things that make one a different person than they were. Alternatively, mania causes a spike in energy, impulsivity, hyperfocusing, inflated confidence, and sometimes even dangerous delusions that lead to the person’s suicide.

All my plants are dying, my cat is still sick, all of my art supplies are scattered everywhere and have been untouched for months. I haven’t been making jewelry or papercrafting. I haven’t been shooting at all. I painted two paintings since I can’t even remember when. I have always been severely depressed, and I’ve been chronically suicidal for most of my life. I live with the heaviness and sadness every day of my life. I have learned to cope with it to some degree, but sometimes it gets so heavy, it is suffocating.

I’m going to water my plants and hope they forgive me and hope that Oskar’s next doses will help him kick the infection. I hope the plants overcome the odds and Oskar heals soon. Life is resilient. I’ve learned that. If it can fight, it will fight, whether it wins or loses. Oskar will be fine soon; I know that. He’s almost completely well. But here’s to hoping the plants have a chance. I hope within the next few posts, I can tell you

“My plants are alive again.”

Taking my own advice 19 October, 2017

Just a quick update to let everyone know how “The Plan” is going. I said I’d start, and I’m proud to say I actually did. I tend to procrastinate and come up with excuses, especially when it comes to postponing recovery, because I’ve said before, the illnesses are hungry, and they ache to be fed. They’re persuasive. They’re angry. But I punched them in the face today.

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How do you break the cycle?

Many mental illnesses, like many other chronic illnesses, are often cyclical. For those of you unfamiliar with the term, this means that at times the illness softens or even goes into a state of “remission,” in which the illness is not as prominent, invasive, difficult, and/or et cetera. This is especially true with mood disorders, such as depression or bipolar disorder. I think a full “remission” is rare, but I’ve known people who have reportedly (or rather, self-reportedly) gone for years without symptoms who end up hospitalized after an episode returns. Still, many illnesses are cyclicallike fibromyalgia for example.

The uni-cycle from hell

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Taking my own advice: 03 June, 2017

A. 3 things I need to let go of:

  • the resentful, regretful, and shameful cocktail I feel over not having lived a normal childhood, adolescence, and/or early adulthood
  • the damage of interpersonal debris
  • that no matter what I do, this body will never be “enough” for my disorders

B. 3 ways to let go:

A.

  • learn to value the lessons and experiences I’ve gained through my unique journeys. Journal what I’ve gained from my life and note what is important to me and what is of great importance to me and what has made me better as a person. Evaluate the strengths and traits integral to my identity and virtues because of my experiences and learn to see them for what they are.
  • perhaps give support groups a second chance and find others who have struggled with similar experiences in which they also have not undergone normal lives. Commiserate and provide comfort to one another in ways we could not get comfort from people who do not understand.
  • recreate some childhood, adolescent, and early adulthood experiences. When I get my GED, maybe have a graduation party of some sort. Plan a party for one of my birthdays, etc. Try to have a “normal” experience, even if it is a couple of years “too” late. Maybe it is never too late.

B.

  • stop holding onto irreparable relationships. Let go of relationships that are draining, toxic, or whose problems outweigh the benefits. This is something I am getting better at but still need to work on.
  • like with point A, try to value the lessons I’ve learned, the wisdom I’ve gained; try to seek the light that the darkness may shed. Write down positive things I’ve learned and positive things I’ve gained from my experiences, positive or negative, with people from my past, and how they have shaped me to become a better and more multifaceted person.
  • surround myself with positive people. Seek positive interpersonal relationships that help uplift and motivate me. Join Meetup groups. Start clubs, go out. Do things. Meet likeminded people who are kind and supportive.

C.

  • Focus on my health and take the numbers out of the equation: Try to weigh myself less, count calories less, and stop doing “skinny mathematics.” Instead, focus on getting the appropriate amount of fuel, motion, and love this body needs.
  • Try very hard to integrate this body into “my” body; try to feel united with it and make peace with it. Stop fighting a war against myself. Think positive thoughts. Post sticky notes as reminders in the mirror if I have to.
  • Be mindful. Drink water when I’m thirsty. Pay attention to hunger cues. Eat until I’m comfortably full. Eat healthy meals. Put good fuel in, not “junk” fuel. Do good things for myself.

Throughout the course of this entry, I already cut off my hOMETOWN. I’ve started on this. I’m doing this. I have to.